Health Care Home - Patient Story - Chloe
This story was submitted by Chloe and her mother, Rebecca.
How do you do? I’m Chloe Schlough!
I am 15 and ½ (don’t forget the ½) and will be starting school at Apollo High School in September – and I am ready for school! I love going to school and being part of the swim team, the school play, adaptive floor hockey, and of course, learning!! I am a good reader, OK at math (but don’t like to tell time) and science is my favorite subject. I’ve been going to school since I was 3 months old (the Birth to 3 program, when the teacher came to my house), center based when I turned 3 years old and on to elementary school from there.
When I was born, my parents, or anyone else for that matter, didn’t know that I had Down syndrome, so it was a surprise!
I was born two days before my due date (my mom says we’ve been late for everything since!) and had some heart issues (AV canal, VSD, patent ductus and a mitral valve deficiency). I was a happy and pretty healthy baby, so was able to wait to have my first heart surgery when I was 11 months old when they repaired my heart. The repair went well (it was a Children’s Hospital in Mpls.); but I needed to have a mitral valve replacement four years later. I was a late walker (36 months) and talker, but I had sign language classes since I was one year old and used sign language until I started talking, after that I didn’t sign as much, because I didn’t need to.
I can check myself in when I go to CentraCare clinic, but they all know me there because I have been seen by Dr. Peitso since I got home from the hospital when I was born. I’ve been there a lot!! I had lots of ear infections, RSV, my thyroid quit working, was monitored for scoliosis, regular blood work to check my INR (that’s because I take Warfarin, an anticoagulant for my artificial mitral valve) and then all the regular stuff that kids come to the pediatrician for….
My mom got involved with Medical Home in the fall of 2005 and she says it has made a BIG difference in our lives! I have a Care Plan that is updated regularly, has everything medical thing a person needs to know about me – and a few other things! My mom says it’s great to have the Care Plan for when we are traveling, for our school nurse, my camp counselor, the specialists I see and it saves time in filling out those forms!
I like Medical Home because everyone seems to know what I need and they talk to me about my health – and that makes me feel even more special. I can get my monthly INR lab work done fast – because we have a standing lab appointment and that makes life easier for me and my family. I like going to CentraCare Women’s and Children’s – even if it means I get a needle stick!
CentraCare Clinic - Women & Children
1900 CentraCare Circle
St. Cloud, MN 56303
Pediatrics Clinic, Suite 1300
Health Care Home Case Coordinator