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Chronic Fatigue Syndrome

National Organization for Rare Disorders, Inc.

Important
It is possible that the main title of the report Chronic Fatigue Syndrome is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.

Synonyms

  • CFIDS
  • CFS
  • Chronic Fatigue and Immune Dysfunction Syndrome

Disorder Subdivisions

  • None

General Discussion

Chronic fatigue syndrome (CFS) is a complex disorder characterized by profound fatigue and other related symptoms. Standards for the diagnosis of CFS have been defined by researchers at the Centers for Disease Control and Prevention (CDC). These include excessive fatigue that does not respond to bed rest, combined with four or more of the following symptoms: substantial impairment in short-term memory or concentration; sore throat; tender lymph nodes; muscle pain; pain in multiple joints without redness or stiffness; headaches of a new type, pattern or severity; unrefreshing sleep; and a general feeling of ill health (malaise) for up to 24 hours after exertion.

Chronic fatigue syndrome has generated significant debate and controversy in the medical community. It remains a poorly understood and potentially debilitating illness. Scientists believe chronic fatigue syndrome is not contagious and that multiple factors including immunological, genetic, environmental ones working in combination cause the development of chronic fatigue syndrome. Laboratory tests (blood, urine, etc.) are of little value in diagnosing the syndrome.

Resources

National Chronic Fatigue Syndrome & Fibromyalgia Association
P.O. Box 18426
Kansas City, MO 64133
USA
Tel: (816)737-1343
Fax: (816)524-6782
Email: information@ncfsfa.org
Internet: http://www.ncfsfa.org

American Autoimmune Related Diseases Association, Inc.
22100 Gratiot Ave.
Eastpointe, MI 48021
Tel: (586)776-3900
Fax: (586)776-3903
Tel: (800)598-4668
Email: aarda@aarda.org
Internet: http://www.aarda.org/

Centers for Disease Control and Prevention
1600 Clifton Road NE
Atlanta, GA 30333
Tel: (404)639-3534
Tel: (800)232-4636
TDD: (888)232-6348
Email: cdcinfo@cdc.gov
Internet: http://www.cdc.gov/

NIH/National Institute of Allergy and Infectious Diseases
Office of Communications and Government Relations
6610 Rockledge Drive, MSC 6612
Bethesda, MD 20892-6612
Tel: (301)496-5717
Fax: (301)402-3573
Tel: (866)284-4107
TDD: (800)877-8339
Email: ocpostoffice@niaid.nih.gov
Internet: http://www.niaid.nih.gov/

American Academy of Allergy, Asthma and Immunology
611 East Wells Street
Milwaukee, WI 53202
Tel: (414)272-6071
Fax: (414)276-3349
Tel: (800)822-2762
Email: info@aaaai.org
Internet: http://www.aaaai.org

CFIDS Association of America
PO Box 220398
Charlotte, NC 28222-0398
USA
Tel: (704)365-2343
Fax: (704)365-9755
Tel: (800)442-3437
Email: cfids@cfids.org
Internet: http://www.cfids.org

National CFIDS Foundation, Inc.
103 Aletha Road
Needham, MA 02492-3931
Tel: (781)449-3535
Fax: (781)449-8606
Email: info@ncf-net.org
Internet: http://www.ncf-net.org

CF-Alliance
P.O. Box 9204
Bardonia, NY 10954
Tel: (914)648-9197
Fax: (845)215-0041
Email: cf_alliance@yahoo.com
Internet: http://www.cfalliance.org/

Wisconsin Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Association, Inc.
733 Lois Drive
Sun Prairie, WI 53590
USA
Tel: (608)834-1001
Tel: (855)878-5555
Email: wicfs-me@yahoo.com
Internet: http://www.wicfs-me.org/

New Horizons Un-Limited, Inc.
811 East Wisconsin Ave
P.O. Box 510034
Milwaukee, WI 53203
USA
Tel: (414)299-0124
Fax: (414)347-1977
Email: horizons@new-horizons.org
Internet: http://www.new-horizons.org

Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
TDD: (888)205-3223
Internet: http://rarediseases.info.nih.gov/GARD/

Autoimmune Information Network, Inc.
PO Box 4121
Brick, NJ 08723
Fax: (732)543-7285
Email: autoimmunehelp@aol.com

European Society for Immunodeficiencies
1-3 rue de Chantepoulet
Geneva, CH 1211
Switzerland
Tel: 410229080484
Fax: 41229069140
Email: esid@kenes.com
Internet: http://www.esid.org

AutoImmunity Community
Email: moderator@autoimmunitycommunity.org
Internet: http://www.autoimmunitycommunity.org

For a Complete Report

This is an abstract of a report from the National Organization for Rare Disorders (NORD). A copy of the complete report can be downloaded free from the NORD website for registered users. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational therapies (if available), and references from medical literature. For a full-text version of this topic, go to www.rarediseases.org and click on Rare Disease Database under "Rare Disease Information".

The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only. NORD recommends that affected individuals seek the advice or counsel of their own personal physicians.

It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report

This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.

For additional information and assistance about rare disorders, please contact the National Organization for Rare Disorders at P.O. Box 1968, Danbury, CT 06813-1968; phone (203) 744-0100; web site www.rarediseases.org or email orphan@rarediseases.org

Last Updated:  1/26/2009
Copyright  1986, 1987, 1988, 1989, 1990, 1991, 1992, 1993, 1994, 1996, 1997, 1998, 2005, 2009 National Organization for Rare Disorders, Inc.

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