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Dermatitis Herpetiformis

National Organization for Rare Disorders, Inc.

Important
It is possible that the main title of the report Dermatitis Herpetiformis is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.

Synonyms

  • Brocq-Duhring Disease
  • Duhring Disease
  • Dermatitis Multiformis
  • DH

Disorder Subdivisions

  • None

General Discussion

Dermatitis herpetiformis, also known as Duhring disease, is a rare, chronic, skin disorder characterized by the presence of groups of severely itchy (pruritic) blisters and raised skin lesions (papules). These are more common on the knees, elbows, buttocks and shoulder blades. The exact cause of this disease is not known although it is frequently associated with the inability to digest gluten (gluten sensitive enteropathy [GSE] or celiac sprue).

Resources

Gluten Intolerance Group of North America
31214 124th Ave SE
Auburn, WA 98092
Tel: (253)833-6655
Fax: (253)833-6675
Email: info@gluten.net
Internet: http://www.gluten.net

NIH/National Institute of Arthritis and Musculoskeletal and Skin Diseases
Information Clearinghouse
One AMS Circle
Bethesda, MD 20892-3675
USA
Tel: (301)495-4484
Fax: (301)718-6366
Tel: (877)226-4267
TDD: (301)565-2966
Email: NIAMSinfo@mail.nih.gov
Internet: http://www.niams.nih.gov/

Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
TDD: (888)205-3223
Internet: http://rarediseases.info.nih.gov/GARD/

National Foundation for Celiac Awareness
P.O. Box 544
224 South Maple Street
Ambler, PA 19002
Tel: (215)325-1306
Fax: (215)643-1707
Email: info@celiaccentral.org
Internet: http://www.CeliacCentral.org

Australasian Blistering Diseases Foundation
St. George Hospital,
Department of Dermatology
Gray Street
Kogarah
Sydney, NSW 2217
Australia
Tel: 0291132088
Fax: 0291132886
Email: info@blisters.org.au
Internet: http://www.blisters.org.au/BDHome.html

Coeliac Society of Australia Inc.
Suite 1, 41 - 45 Pacific Highway
Waitara, NSW 2077
Australia
Tel: 0294875088
Fax: 0294875177
Tel: 1800458836
Email: info@coeliacsociety.com.au
Internet: http://www.coeliacsociety.com.au

For a Complete Report

This is an abstract of a report from the National Organization for Rare Disorders (NORD). A copy of the complete report can be downloaded free from the NORD website for registered users. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational therapies (if available), and references from medical literature. For a full-text version of this topic, go to www.rarediseases.org and click on Rare Disease Database under "Rare Disease Information".

The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only. NORD recommends that affected individuals seek the advice or counsel of their own personal physicians.

It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report

This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.

For additional information and assistance about rare disorders, please contact the National Organization for Rare Disorders at P.O. Box 1968, Danbury, CT 06813-1968; phone (203) 744-0100; web site www.rarediseases.org or email orphan@rarediseases.org

Last Updated:  1/29/2008
Copyright  1986, 1988, 1991, 1992, 1994, 1996, 1998, 2005 National Organization for Rare Disorders, Inc.

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