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Acoustic Neuroma

National Organization for Rare Disorders, Inc.

Important
It is possible that the main title of the report Acoustic Neuroma is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.

Synonyms

  • acoustic neurilemoma
  • acoustic neurinoma
  • fibroblastoma, perineural
  • neurinoma of the acoustic nerve
  • schwannoma of the acoustic nerve
  • vestibular schwannoma
  • neurofibroma of the acoustic nerve

Disorder Subdivisions

  • None

General Discussion

An acoustic neuroma, also known as a vestibular schwannoma, is a rare benign (non-cancerous) growth that develops on the eighth cranial nerve. This nerve runs from the inner ear to the brain and is responsible for hearing and balance (equilibrium). There is no standard or typical pattern of symptom development, although hearing loss in one ear (unilateral) is the initial symptom in approximately 90 percent of cases. Additional findings include ringing in the ears (tinnitus) and dizziness. The symptoms of an acoustic neuroma occur from the tumor pressing against the eighth cranial nerve and disrupting its ability to transmit nerve signals to the brain. An acoustic neuroma is not cancerous (malignant); it does not spread to other parts of the body. The reason an acoustic neuroma forms is unknown.

Resources

Vestibular Disorders Association
PO Box 13305
Portland, OR 97208-4467
USA
Tel: (503)229-7705
Fax: (503)229-8064
Tel: (800)837-8428
Email: veda@vestibular.org
Internet: http://www.vestibular.org

Children's Tumor Foundation
95 Pine Street
16th Floor
New York, NY 10005-4002
Tel: (212)344-6633
Fax: (212)747-0004
Tel: (800)323-7938
TDD: (212)344-6633
Email: info@ctf.org
Internet: http://www.ctf.org/

American Tinnitus Association
522 S.W. Fifth Avenue Suite 825
Portland, OR 97207
United States
Tel: (503)248-9985
Fax: (503)248-0024
Tel: (800)634-8978
Email: tinnitus@ata.org
Internet: http://www.ata.org

Hearing Health Foundation
363 Seventh Avenue, 10th Floor
New York, NY 10016-3904
United States
Tel: (212)257-6140
Fax: (212)257-6139
Tel: (866)454-3924
TDD: (888)435-6104
Email: info@hearinghealthfoundation.org
Internet: http://hearinghealthfoundation.org/home

Acoustic Neuroma Association
600 Peachtree Parkway
Suite 108
Cumming, GA 30014
USA
Tel: (770)205-8211
Fax: (770)205-0239
Tel: (877)200-8211
Email: info@anausa.org
Internet: http://www.anausa.org

Alexander Graham Bell Association for the Deaf and Hard of Hearing
3417 Volta Place NW
Washington, DC 20007-2778
United States
Tel: (202)337-5220
Fax: (202)337-8314
Tel: (866)337-5220
TDD: (202)337-5221
Email: info@agbell.org
Internet: http://www.agbell.org

Better Hearing Institute
1444 I Street NW
Suite 700
Washington, DC 20005
United States
Tel: (202)449-1100
Fax: (703)684-6048
Tel: (800)327-9355
Email: mail@betterhearing.org
Internet: http://www.betterhearing.org

NIH/National Institute on Deafness and Other Communication Disorders
31 Center Drive, MSC 2320
Communication Avenue
Bethesda, MD 20892-3456
Tel: (301)402-0900
Fax: (301)907-8830
Tel: (800)241-1044
TDD: (800)241-1105
Email: nidcdinfo@nidcd.nih.gov
Internet: http://www.nidcd.nih.gov

Acoustic Neuroma Association of Canada
PO Box 193
Buckthorn, Ontario, KOL 1JO
Canada
Tel: 8005612622
Email: info@anac.ca
Internet: http://www.anac.ca

British Acoustic Neuroma Association
Oak House B
Ransom Wood Business Park
Southwell Road West
Mansfield
Nottinghamshire, NG21 0HJ
United Kingdom
Tel: 01623632143
Fax: 01632635313
Tel: 08006523143
Email: admin@bana-uk.com
Internet: http://www.bana-uk.com

Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
TDD: (888)205-3223
Internet: http://rarediseases.info.nih.gov/GARD/

Madisons Foundation
PO Box 241956
Los Angeles, CA 90024
Tel: (310)264-0826
Fax: (310)264-4766
Email: getinfo@madisonsfoundation.org
Internet: http://www.madisonsfoundation.org

American Academy of Audiology
11730 Plaza America Drive, Suite 300
Reston, VA 20190
Tel: (703)790-8466
Fax: (703)790-8631
Tel: (800)222-2336
Email: infoaud@audiology.org
Internet: http://www.audiology.org

For a Complete Report

This is an abstract of a report from the National Organization for Rare Disorders (NORD). A copy of the complete report can be downloaded free from the NORD website for registered users. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational therapies (if available), and references from medical literature. For a full-text version of this topic, go to www.rarediseases.org and click on Rare Disease Database under "Rare Disease Information".

The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only. NORD recommends that affected individuals seek the advice or counsel of their own personal physicians.

It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report

This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.

For additional information and assistance about rare disorders, please contact the National Organization for Rare Disorders at P.O. Box 1968, Danbury, CT 06813-1968; phone (203) 744-0100; web site www.rarediseases.org or email orphan@rarediseases.org

Last Updated:  2/7/2013
Copyright  1985, 1988, 1992, 1993, 1994, 1998, 2002, 2010, 2013 National Organization for Rare Disorders, Inc.

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