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Androgen Insensitivity

Self Help Clearinghouse

This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site.

AIS Support Group

International. Founded 1995. Provides information and support to young people and adults with complete and partial Androgen Insensitivity Syndrome and to parents of AIS youngsters. Also provides support to those affected by Sweyer's syndrome (XY gonadal dysgenesis), 5 alpha reductase deficiency, Leydig Cell Hypoplasia, Mayer-Rokitansky-Kuster_Hauser (MRKH) syndrome, Lullerian dysgenesis, Mullerian duct aplasia, vaginal atresia and other related conditions.
Write:
AISSG
P.O. Box 2148
Duncan, OK 73534-2148
Website: http://www.aissg.org
E-Mail: aisdsd@hotmail.com
Verified: 12/19/2013

AIS-DSD Support Group for Women and Families

Founded 1995. Provides information and support to individuals and families affected by androgen insensitivity syndrome (AIS) and other Disorders of Sex Development, including but not limited to 46XY gonadal dysgenesis - Swyer's syndrome, gonadal dysgenesis/mixed gonadal dysgenesis, 5-alpha reductase deficiency, 17-beta hydroxysteroid dehydrogenase deficiciency, MRKH syndrome, CAH and ovotesticular DSD. Support for affected adults (female identified and male identified), parents and teens. Information and referrals, phone support, secure online chat forums, private social media forums, regional and national support group meetings, access tp distinguished Medical Advisory Panel, literature and advocacy.
Write:
AIS-DSD Support Group/Women and Families
PO Box 2148
Duncan, OK 73534-2148
Website: http://www.aissgusa.org
E-Mail: aissgusa@hotmail.com
Verified: 2/28/2014

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